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In 1978, Dr. Nehama T.
Baum Ph.D., C. Psych. asked the Ministry of Community of Social
Services for a grant to open a day treatment program for children
with dual diagnosis. This request was rejected stating that such
a service was not needed.
Dr.
Baum realized that only an actual demonstration of her innovative
and progressive methods would eventually bring about public funding.
She decided not to wait for public funding and opened the Children's
Treatment Centre as a private school. Her objective was to provide
treatment to those challenging children who had been rejected by
the regular school system as a result of the severe manifestations
of their complex handicapping conditions.
In
1979, Dr. Baum opened Thera Studies, a private school for children
with multiple developmental disabilities with three staff members
and seven students. At that time, students had to pay tuition for
their treatment because no public funding was granted. Thera Studies
stands for therapy and study, which are at the foundation of the
educational and treatment approach used at the school.
Within
only one year of its inception, in 1980, Thera Studies had acquired
a reputation as a children's treatment centre that successfully
provided treatment to the most difficult children in Metro Toronto.
With this recognition the number of students grew to 16 and the
Ministry of Community and Social Services started to provide funding
to some of the students on a purchase of services basis. However,
some families were unsuccessful in their efforts to secure Ministry
funding for their children and had to continue paying tuition fees.
Dr.
Baum strongly believed that every child, regardless of his/her race,
religion or financial situation, is entitled to receive the education
and treatment he or she requires. Thus, in 1980, she established
the Muki Baum Association, a charitable organization with a sole
and limited function of raising funds to pay for the treatment of
the children who did not succeed in securing Ministry funding.
The
school's reputation grew. Its continuous success in treating the
most challenging children and adolescents in Metro Toronto and vicinity
brought more students requiring services and treatment. By 1983,
the school already had 36 students who came to it desperate and
without hope. Thera Studies was a last resort for most of these
children. Now they were being referred not only by their parents,
but also by other agencies and school boards. Even the Special Need
Unit at the Ministry of Community and Social Services utilized the
school to find treatment solutions to their most complex and challenging
cases.
In
1984, with the forthcoming proclamation of Bill 82 - the Educational
Act, the Ministry of Community and Social Services became concerned
that no additional Ministry rehabilitation funding would be granted
for the purchase of services in private schools.
This
lack of funding meant that the challenging students treated by Thera
Studies would once again have no treatment program suitable for
them and therefore become cases on the case load of the Special
Needs Unit in the Ministry.
In
order to secure the continuous education and treatment of these
hard to serve children, through a unique and unprecedented move,
Dr. Baum was asked by the Ministry of Community and Social Services
to turn Thera Studies into a publicly funded agency.
In
September 1984, Thera Studies became a publicly funded agency, and
the name "Muki Baum Association", which was never intended
to be more than the name of a small fundraising charitable organization,
become the operating name of the agency.
Finally,
five years after the inception of the Thera Studies Treatment Centre,
children and their families were able to receive the treatment they
needed at the Muki Baum Treatment Centre without worrying about
paying or securing the funding for tuition fees. The service was
given free of charge.
The
funding for the Muki Baum Children's Treatment Centre was shared
by two Ministries: The Ministry of Community and Social Services
covering the cost of the treatment aspect of the centre, and the
Ministry of Education via the North York Board of Education covering
the cost of the educational aspect of the centre.
The
centre grew in leaps and bounds during the following three years.
Many children in dire need for this specialized treatment applied
and the number of students from all over Metro Toronto and vicinity
served at the Muki Baum Treatment Centre grew to 60. The number
of staff increased to 42 including special educational teachers,
educational assistants and therapists.
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The
Multi - Focal Approach
Since
the school's inception, art, creativity and psychotherapy have been
fundamental elements utilized in the treatment of the students.
The school was one of the only treatment centres in the world for
children with developmental disabilities and severe emotional or
psychiatric disorders, i.e. dual diagnosis, using art therapy, music
therapy, dance therapy and Sandplay Therapy in the treatment of
these children. Dr. Baum's revolutionary Multi-Focal Approach provided
the therapists and the classroom staff with the in-depth, humanistic
treatment framework within which these expressive arts therapies
and creative classroom teaching techniques were used.
The
children, who experienced constant failure before coming to the
centre, started to flourish and for the first time in their lives,
experienced success. With the improvement of their self-image, they
no longer needed to use aggressive behaviours to communicate their
needs and to push their human environment to take care of them.
Kids
grow up and become adults. A need for an adult treatment centre
emerged upon the forced graduation of the first group of young adults.
In 1987, as a result of negotiations between the two funding Ministries,
the Ministry of Community and Social Services took upon itself the
responsibility to solely fund a separate Adult Program. It also
made a commitment to provide to the Adult Program, annual expansion
funding for the graduates of the Children's Program. This commitment
was kept until 1994 when it was cancelled due to Ministry cutbacks
and budget restraints.
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Adult
Program Opens
The
Muki Baum Treatment Centre for Dually Diagnosed Adults was opened
in September 1987, with the 16 adults who had graduated from the
school and seven staff members. During the 1987/88 school year
the Adult Program was housed in one room at the Children's Treatment
Centre.
The
struggle to provide the people served with the environment suitable
for them propelled the negotiations with the Ministry. Dr. Baum
was able to convince the Ministry of Community and Social Services
that to have 16 adults and seven staff members in one room was too
crowded and stressful, and thus was negatively affecting the quality
of their treatment. Additionally, Dr. Baum explained to the Ministry
that Adults need to learn to function in an Adult Environment, so
that they will be able to develop an adult self-image and adult
life skills rather than see themselves as children who attend school.
In
1989, as a result of Dr. Baum's efforts, the Muki Baum Treatment
Centre for Dually Diagnosed Adults moved to its new quarters and
has since expanded to serve 60 adults with 38 staff members.
The
Multi-Focal Approach provided the treatment foundation to the
Adult
Program as well. Through this use, expressive arts therapies proved
to also be efficient in the treatment of adults with dual diagnosis.
Similar to the Children's Program, the Adult Program soon
became the program that accepted the most challenging cases in
the
system.
The Adult Program manifested the success that can be achieved
if proper in-depth, creative psychotherapy is provided in addition
to the use of a humanistic training program, which focuses on the
teaching of vocational, social and life skills.
It
is the normal course of human development that adults eventually
leave their parents' home to establish their own independent life
opportunities. As Dr. Baum advocates, such life opportunities should
also be available to adults with disabilities. However, public funding
is needed so that this development, which is natural to people without
disabilities, will also be available to adults with disabilities
who want to move to their own homes.
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Residential
Program Wins Support
Throughout
Muki Baum's history, dreams and plans for new programs became
a
reality when the need for solutions to challenging situations emerged
in the system. Thus, an opportunity presented itself and the
expansion
trend continued. In the later part of 1991, the Ministry of Community
and Social Services approached the Muki Baum Association and
asked
that a High Support Residential Program be developed for 10 adults
who lived in an institution. This was exactly the opportunity
that
Dr. Baum was waiting for. Through negotiation, the Ministry agreed
to add money to the funding of these 10 adults in order to serve
five additional individuals whose parents did not place them in
institutions but rather took care of them at home all these
years.
These five adults from the community formed the third house, which
the Association built in 1992. To provide these 15 adults
with
high quality of life
content, an extensive High Support Residential Program was developed
within which these new concepts were implemented.
The
same thorough approach used in the development of each of the previous
programs, Dr. Baum and the Association developed the new program.
The three houses were specifically designed to create the suitable
physical environment for the residents. The physical design incorporated
concepts of space, color and light to enhance a therapeutic, healing
environment which proved to be efficient in supporting the establishment
of the residents' improved quality of life and their emotional well-being.
The
development did not stop with the Residential Program. The Association
continued to grow and venture into new areas. The realization
that
people with developmental disabilities and emotional/psychiatric
disorders have artistic talent came through the experience gained
through the therapeutic work, which is one of the corner stones
of the treatment approach used throughout the Association. In
expressive
therapy, the end product of the creative act is not judged according
to artistic standards but is perceived as the by-product of the
therapeutic process. Nonetheless, the artworks created revealed
that some children and adults served by the Association have
artistic
talents. In 1993 The School of the Arts emerges with the Ability
Beyond Disability Project. With Dr. Baum's
leadership, research and guidance, innovative art teaching methods
were developed. In 1995 the School of the Arts has officially
opened
its doors. It provided the students with an opportunity to learn
how to create high quality art and strive to achieve a life direction
for themselves. This art education program provided an opportunity
the School of Art students to exhibit their work in the community
in various shows and presentations.
The
School of Arts had 5 full time students served by six full-time
staff.
It served students from the Children's Program and adults from
the Adult Day Program. In addition, the realization that there
might
be other people with disabilities in the community who have artistic
talent, motivated us to expand our services in 1997 and offer
art
instruction in an Outreach Program to people from the community
and other agencies.
For
Dr. Baum and the Association, the School of Arts, which was a unique
and innovative program, was an essential component in achieving
the goal of improving the quality of life of the people served.
For the Ministry, however, art and art education are not considered
to be essential to the lives of people with developmental disabilities.
As a result the Ministry of Community and Social Services had not
provided funding to the School of Arts nor to its Outreach Program.
Rather, the school had been supported by the fundraising efforts
of the Association.
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Community
Living Initiative
While
the Ministry did not cover the cost of the programs at the School
of Arts, it had funding available for the development of programs
for the repatriation of people who lived for many years in institutions
and who were re-integrated into their communities of origin. The
Muki Baum Association became part of this Community Living Initiative
(CLI) and in 1997 opened its high support sixplex apartment program.
The funded move of these CLI individuals enabled some of the
more
veteran residents of the Muki Baum Association, who came from the
institutions to the Association in 1992 and 1993, to move to
a more
independent life in the sixplex apartment program. The new, more
needy, CLI individuals were able then to receive a higher
level
of
support in a group home residential setting. In total, the Association
integrated 12 new residents through the CLI initiative.
Three
of the CLI individuals were integrated into the Muki Baum Association's
newest adult resident. A group home that was purchased at the end
of 1997 with the funds raised by five families who worked for more
than five years to develop a high support residential solution for
their high needs, challenging adult sons and daughters. The house
was opened in February 1997.
Obtaining
funding for the operational dollars needed for the house was a different
matter. Through the Ministry's Quality of Life Project, three of
the five families were able to secure partial funding for their
adult children. The families of the other two high needs, challenging
individuals were not successful in obtaining any funding from the
Ministry. To offset the large deficit of the operational cost of
this high support group home, three individuals from the institution
who have been fully funded by the CLI program were integrated into
the house. The remainder of the annual operational deficit of this
group home has been covered through the fundraising efforts of the
Association.
In
1997, in a letter to the Ministry of Community and Social Services,
Dr. Baum developed a concept of a therapeutic, high support treatment
group home for children. At that time the Ministry rejected the
request. However as the Muki Baum Association's history has shown,
a situation occurred in the system in which the need for such a
treatment house became urgent. The Muki Baum Association was asked
to submit a proposal for this program and in November 1999 the first
Muki Baum Association Children's High Support Treatment Group Home,
with a capacity of five beds opened its doors, to date three children
have moved in.
By
no means is this the last Muki Baum Association program approved
for funding by the Ministry. Toward the end of 1999, Dr. Baum was
able to obtain funding approval for the creation of a new Section
19 Children's Day Treatment Program in York Region. The Program
opened at Holy Family School in York Region, September 2000, with
18 students.
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