
Read Sharon & Nancy's stories
as they write about the joys and challenges of being mom
to a child with complex disabilities.
Parent Stories!
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Diverse,
yet similar stories written by [three] mothers
of children
with chronic special needs.
- Bunny Iskov
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Josh
- By
the time Josh reached Grade 2, he had faced numerous
transitions in a variety
of school-based programs. Read more ... |
Jill
- She
slept infrequently, had problems feeding and she
cried almost constantly.. Read more ... |
Howie
-
His schizophrenia and paranoia were paramount, to
the point where he could not function
properly. Read
more ... |
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Nancy's Story
Joshua
Latowsky was diagnosed with Autism when he was only 26
months old. Although Josh is only 13 and a half years
old today, he has had quite an eventful young life. Josh
participated
in an integrated pre-school program that appreciated
his uniqueness. When he was too old to continue, his dad
and
I were able to access a few useful programs in the community,
although utilizing them were not so easy. There were
waiting lists and none of the programs were comprehensive
enough
to meet Joshua's needs. Both research and advocacy were
necessary on our behalf to maximize the few opportunities
in existence for an autistic child. By the time Josh
reached Grade 2, he had faced numerous transitions in a
variety
of school-based programs. However, none were successful
in educating and treating our son. The complex autism
disorder coupled with manifestations of inappropriate behaviours
were too demanding and the teaching staff were not trained
to cope with such an unusual little boy. The programs
were
limited and
not sufficient to help our son accept and trust his
environment. The
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other
parents of normal children would not tolerate Joshua's
outbursts,
tantrums and screaming fits.
When
we first visited the Muki Baum Association's Children's
Day Program, we immediately knew we had discovered
a "hidden
treasure". We were pleasantly greeted by a young
man who showed us our way to the office. We had a warm
feeling of a place we knew Josh could belong in - a place where
he would be able to overcome his fears and limitations.
The Muki Baum Association provided the first program
where his
needs are met holistically, by offering our son sensory
integration therapy, music therapy, relaxation therapy,
communication systems and formal education, along with
hugs, consant praise and a safe environment.
We
are relieved and delighted for Josh and our family now
that we are a part of the Muki Baum "family".
Our son is appreciated, his challenges tolerated and
his strengths and humour built upon. We are grateful
that Josh is accepted for who he is and as a result,
he has become more at peace with himself. Josh's life
is truly enhanced due to his experiences with the Muki
Baum Association.
-
Nancy L.
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Sharon's
Story
Our
beautiful little girl, Jill was born bright-eyed and
beautiful. We were overjoyed. We now had the perfect
family - a son and a daughter. She was, however, very
different and difficult from the start. She slept infrequently,
had problems feeding and she cried almost constantly.
As time wore on, we couldn't seem to teach her the normal
baby things.
When Jill was only 22 months old, we received the devastating
news that she was mentally handicapped. It was one of the
most emotional days of our lives. Our world came to a crashing
halt. We had no experience with disabilities, but we made
every effort to get involved with as many programs as possible.
We always took her somewhere for stimulation and assessments.
Jill started nursery school with other disabled children,
but she did nothing but cry there. After much searching
and many refusals, we placed her in a regular nursery setting.
She was much happier there and the other children accepted
her quite well. She remained there until her teen years,
with trips to Surrey Place Centre for behaviour management.
This did wondrous things for Jill. All of a sudden she
began to enjoy puzzles and artwork and her demeanor changed
as well. We then realized she did have much more capability
than was being realized.
Senior
school was a disaster. We became more and more
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frustrated
by her lack of progress and the fact that no one put
any effort
into Jill. The teachers there refused to recognize any
human potential for our daughter. It got to the point
where we just couldn't leave her there any more. We frantically
searched for a more suitable learning facility for Jill.
We
heard of a place called Thera Studies, founded by a lady
who had a special needs child of her own. We visited
the program and were very impressed with what we found.
Jill was accepted into their school, which eventually
became the Muki Baum Association. Jill blossomed in their
program and even won an award for being the most improved
student.
She
has remained with the Association ever since. The staff
ratio to student is high, the dedication unique. We believe
Jill's greatest joy is when she is with her peers and
staff. She fancies herself quite the important person
and is the social butterfly at her program.
We
know our daughter is very lucky to be part of the Muki
Baum program and we are thrilled to be part of the Muki
Baum "family". We don't know what we would
have done without Muki Baum.
Jill
now resides in one of the Muki Baum group homes and she
has learned to be much more self-sufficient. Even though
our little girl is happy to come home for visits, she
is always pleased to go back to her friends. Muki Baum
has really given Jill a much better chance at life and
we will be forever thankful.
-
Sharon B.
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It
Seems Like Only Yesterday
It
seems like only yesterday when Howie was just a little
boy. It seems like only yesterday when his dad and
I learned that Howie would never be normal. Today,
Howie is 31 years old and although he isn’t normal,
he is wonderful. Howie is happy, affectionate, well
adjusted and well mannered. He enjoys life and he enjoys
every day of his life and this is mainly because of
the Muki Baum Association.
When
he was younger and we were still searching for the
right diagnosis and the right medicine, life for Howie
was terrifying. His schizophrenia and paranoia were
paramount, to the point where he could not function
properly. Every corner held terror and fear for Howie.
Even moving from one room to another was like climbing
the highest mountain, fearing a violent monster would
only be there waiting to harm him on the other side
of the doorway.
Since
Howie began his journey to adulthood under the care
and treatment of the Muki Baum Association, he has
realized many successes. Howie’s schizophrenia
has been tamed by Risperidone. Since taking this medication,
he can accept
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change,
welcome new faces and surroundings, and enjoy simple
things like walking through a mall
without wanting to hide behind the garbage cans, like
he did when he was a little boy. He doesn’t punch
holes in the walls and he doesn’t try to destroy
the things he loves. Not any more.
Without
the Muki Baum Association, Howie would have languished
in a world of emotional and psychological pain. The
intensive one-on-one sessions, the sand play therapy,
the music therapy and the multi-focal approach have
all helped to restore Howie’s self-esteem and
have allowed him to mature into the wonderful man that
he is today.
It
seems like only yesterday when Howie began his road
to success with the Muki Baum Association when he was
just 7 years old. It seems like only yesterday when
Howie moved out of our home and into his own home with
the help of the Muki Baum Association. Howie shares
his home with other clients at the adult program. He
lives in the Eckler House on Brooke Avenue.
Howie
enjoys a life of quality and a life of independence,
and it only seems like yesterday when it all began.
-
Bunny I.
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